A Love Letter to My Missing Protein

A Love Letter to My Missing Protein

Dear Dystrophin, Did I ever tell you how much I miss you?  I often look through my childhood photos and remember how good we were together.  It was you and me, partners in crime, unafraid of all things ahead.  Though I’d fall on occasion, you were there to pick me up…...
Run, Stop, Go

Run, Stop, Go

Ironic, isn’t it, how things work out sometimes?  You spend the entire day readjusting your cushion because of excruciating numbness and pain and right before going to bed, the last try makes everything comfortable.  I wonder if dignity exists in this death I call my...
This is My Life: Despite My Diagnosis

This is My Life: Despite My Diagnosis

In my eyes, there was always a glimmer of hope that took me away from Duchenne muscular dystrophy.  I remember in first grade when the symptoms began to manifest, my weak legs had a great effect on me.  I had much difficulty returning to my feet after sitting on the...
The Exploitation of Black People

The Exploitation of Black People

Doesn’t it break your heart, seeing child sponsorship commercials with African babies covered in flies?  It’s impossible to watch television without having them plastered all over your screen.  If such organizations actually cared, the budget for advertising, along...
Why Special Needs Moms are Superhuman

Why Special Needs Moms are Superhuman

When mother revealed that she wanted to end her life following my Duchenne muscular dystrophy diagnosis, I didn’t feel sorry for her.  Instead, it compelled me to realize how much more strength she possessed, compared to my original admiration.  I’ll never forget when...