Why Duchenne Boys are Superheroes

Why Duchenne Boys are Superheroes

As one of the oldest living individuals diagnosed with Duchenne muscular dystrophy, I’m called an inspiration, practically on a daily basis, but the truth remains.  Everyone who fights this disease encourages and motivates me to continue, despite the odds.  Children...
To My Future Wife

To My Future Wife

Dear Future Wife, There are places in my heart that are yours alone.  In them I linger, thinking of you.  As you plunge your quivering lips into mine, I gasp for my final breath in the softness of your mouth with teardrops in our kiss.  Closing my eyes to this...
The Romantic Flavours of Duchenne

The Romantic Flavours of Duchenne

Sometimes I wonder why it’s so impossible to let go of my non-memories of romance.  I can’t seem to bear the thought of losing the items of imagination that existed none.  I suppose it’s just the consequences of life when you’re imprisoned within your own body.  I...
This is My Life: Living, not Existing

This is My Life: Living, not Existing

Are you excited about life?  I suppose with Duchenne muscular dystrophy, there technically isn’t much to look forward to, especially when you get to a certain age.  Though stability exists, there are still times when you awake without knowing what to expect in terms...
The Fundamental Truth of Christ’s Salvation

The Fundamental Truth of Christ’s Salvation

As someone with Duchenne muscular dystrophy, the world expects me to be an “inspiration”.  However, I’m nothing admirable.  I’m just a man in a wheelchair, a sinner saved by grace. 2 Samuel 7:18: “Then went king David in, and sat before the Lord, and he said, Who am...