The Handjob Incident

The Handjob Incident

How do people in wheelchairs take a leak?  You’re probably thinking urinals, or even diapers… oh, hell no!  Instead, I use condom catheters, like jet fighter pilots, since it’s obviously a war crime to pee on the enemy. When I first discovered them, it was quite the...
A Few Words for Duchenne

A Few Words for Duchenne

Dear Duchenne muscular dystrophy, This journey has been a long and winding road, and not only for me, but you as well.  Both of us continue fighting relentlessly with the finish line moving further away.  I know it might come as a surprise, but I wanted to say thank...
Positivity 101

Positivity 101

Putting on a smiling face amid a chronic disorder that takes away every ounce of strength, is incredibly difficult, but who ever said that life was easy?  With Duchenne muscular dystrophy, you work so much harder for rewards, yet despite how the physical keeps getting...
This is My Life: A Brief History of Growing Up

This is My Life: A Brief History of Growing Up

Growing up was quite the experience; a struggle perhaps, but I had the time of my life that provided many opportunities.  The story begins in my toddler days when my enlarged calves were noticed.  It’s one of the symptoms of Duchenne muscular dystrophy, a genetic...
How Not to Be a Crippled Loser

How Not to Be a Crippled Loser

So many wheelchair people ask how I managed to “get [myself] out there”, despite my physical disability; how I got over the self-consciousness that most of us face.  The truth is that for some years, I had become an incompetent person, which, surprisingly, isn’t...