10 Nice Things to Do for Your Duchenne Mom

New blog: Did you know that you’re your Duchenne Mom’s main caregiver too?  It takes great courage, focusing on others while facing immense adversity, but if you utilize your hardships to make the world around you a better place, it creates worthiness in suffering.  Your mother didn’t just sacrifice her time caring for you.  She gave her life, and it’s always time to give back.  What can you do for her?  The following are some of the things you can easily do.

Be Nice!

a bittersweet fairytale

The no holds barred, brutally honest yet adorkably hilarious look into Ricky’s unconventional life with Duchenne muscular dystrophy.

Welcome

Duchenne Tip of the Week

If your non-ambulatory child is having pain in the soles of his feet, it means they are probably twisting inwards due to tendon contractures. The pressure from the wheelchair footrests is the cause of this, so talk to his occupational therapist about getting fitted shoes.  For the time being, however, he could wear soft, plush slippers and put them on a cushion to have a bit of comfort.

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Romance Tip of the Week

Going into a relationship is not about telling her you love her as soon as possible. Sit next to her and have a conversation.  Sometimes, the simplest things are the gateway to a realm where you may be graced with the privilege of discovering and rediscovering her for the person she is.  Take the time to unwrap her heart, one whisper at a time.  Be content that she exists in your life and let everything happen naturally.

Archive

Cooking Tip of the Week

Tired of melting Popsicles making a mess? Use Jell-O!  Just make your regular mixture with your favourite flavours, but instead of the refrigerator, pour it into your moulds and freeze.  Soon, you and your family will have a handful of treats without the hassle!

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Featured Content

This section is updated on a regular basis. Please check back often to read more fantastic blogs.

The Dignity That Comes with Choice

The Dignity That Comes with Choice

by | Apr 6, 2016 | | 0 Comments

There is no denying that the symptoms of Duchenne muscular dystrophy steal away our physical dignity.  Even in normal life, death eventually consumes and our bodies decay, only no one is an acting witness when we’re in the grave.  However, with this disease, everyone...

Your Duchenne Guide to Dating Ricky

Your Duchenne Guide to Dating Ricky

by | Feb 15, 2016 | | 1 Comment

Are you tired of boring relationships?  Do you feel as if the romance in your life is lacking, and that anything resembling it is cliché and gag-worthy?  Are you looking for something more… adventurous? If so, this is the guide for you because Ricky’s version isn’t...

Romancing the Undead

Romancing the Undead

by | Feb 14, 2016 | | 0 Comments

Dear Zombie Princess, While surrounded by the empty silence of this nuclear holocaust, I’m here alone with you, lost without your presence.  But no matter the hopelessness, I have faith that the girl from before still lingers, somewhere within the confines of your...

Romance, in Light of Duchenne

Romance, in Light of Duchenne

by | Dec 30, 2015 | | 0 Comments

They call me Superman; I have no superpowers.  They call me a warrior; I have no weapons.  A soldier they say, only, I wear no uniform.  It may be hard to believe for some, though I never had much difficulty, but I’m human, just like everyone else.  What I don’t...

This is My Life: A Brief History of Growing Up

This is My Life: A Brief History of Growing Up

by | Jan 11, 2016 | | 3 Comments

Growing up was quite the experience; a struggle perhaps, but I had the time of my life that provided many opportunities.  The story begins in my toddler days when my enlarged calves were noticed.  It’s one of the symptoms of Duchenne muscular dystrophy, a genetic...