The Duchenne Zombie Apocalypse Survival Guide

The Duchenne Zombie Apocalypse Survival Guide

We’ve been fighting this war for the longest time, unbeknownst to the public.  The government issued a nationwide alert for citizens to remain inside their homes, but there is no hope for anyone.  What they didn’t tell you is that the best chance for humanity rests at...
Why Duchenne Boys are Superheroes

Why Duchenne Boys are Superheroes

As one of the oldest living individuals diagnosed with Duchenne muscular dystrophy, I’m called an inspiration, practically on a daily basis, but the truth remains.  Everyone who fights this disease encourages and motivates me to continue, despite the odds.  Children...
Why Special Needs Dads are Superhuman

Why Special Needs Dads are Superhuman

While mothers are usually the main caregivers of children with special needs, fathers are the ones who keep the family unit intact behind the scenes.  In many ways, being a father is to also be the silent hero.  It’s finally time to break that silence.  Here are ten...
Why Special Needs Moms are Superhuman

Why Special Needs Moms are Superhuman

When mother revealed that she wanted to end her life following my Duchenne muscular dystrophy diagnosis, I didn’t feel sorry for her.  Instead, it compelled me to realize how much more strength she possessed, compared to my original admiration.  I’ll never forget when...
Sex, in Light of Duchenne

Sex, in Light of Duchenne

No.  I can’t masturbate.  It isn’t something that “inspirational” cripples publicly announce when they’re expected to act a certain way, while fearing women might think them asexual.  Then again, I never gave a damn about what anyone thought. Sometimes I catch myself...
If This is What it Takes

If This is What it Takes

My last visit to emergency was three months ago this day.  I gasped for air while my entire body went numb.  For the first time, the doctor said there was nothing he could do.  It was hopeless, hearing those words from the head of Intensive Care, but going home was at...